Acoustic panels

{
    "type": "entry",
    "published": "2024-03-09T23:37:06-08:00",
    "url": "https://beesbuzz.biz/blog/7522-Acoustic-panels",
    "name": "Acoustic panels",
    "author": {
        "type": "card",
        "name": "fluffy",
        "url": "https://beesbuzz.biz/",
        "photo": "https://beesbuzz.biz/static/headshot.jpg"
    },
    "post-type": "article",
    "_id": "40506877",
    "_source": "2778"
}

Today’s accomplishments

{
    "type": "entry",
    "published": "2024-03-09T00:57:04-08:00",
    "url": "https://beesbuzz.biz/blog/5342-Todays-accomplishments",
    "name": "Today\u2019s accomplishments",
    "author": {
        "type": "card",
        "name": "fluffy",
        "url": "https://beesbuzz.biz/",
        "photo": "https://beesbuzz.biz/static/headshot.jpg"
    },
    "post-type": "article",
    "_id": "40500108",
    "_source": "2778"
}

{
    "type": "entry",
    "published": "2024-03-08T15:44:56-0500",
    "url": "https://martymcgui.re/2024/03/08/154456/",
    "category": [
        "copyright",
        "bullshit",
        "nytimes"
    ],
    "syndication": [
        "https://fed.brid.gy/"
    ],
    "content": {
        "text": "NYTimes trying to prove that we cannot have nice things on the open web. \ud83e\udd2c\nhttps://www.404media.co/nytimes-files-copyright-takedowns-against-hundreds-of-wordle-clones/\nPer the Times\u2019 complaint:\n\nThe Times\u2019s Wordle copyright includes the unique elements of its immensely popular game, such as the 5x6 grid, green tiles to indicate correct guesses, yellow tiles to indicate the correct letter but the wrong place within the word, and the keyboard directly beneath the grid. Times\u2019s Wordle copyright includes the unique elements of its immensely popular game, such as the 5x6 grid, green tiles to indicate correct guesses, yellow tiles to indicate the correct letter but the wrong place within the word, and the keyboard directly beneath the grid.\n\nWow, folks. Careful about how you place keyboards relative to grids.",
        "html": "<p>NYTimes trying to prove that we cannot have nice things on the open web. \ud83e\udd2c</p>\n<p><a href=\"https://www.404media.co/nytimes-files-copyright-takedowns-against-hundreds-of-wordle-clones/\">https://www.404media.co/nytimes-files-copyright-takedowns-against-hundreds-of-wordle-clones/</a></p>\n<p>Per the Times\u2019 complaint:</p>\n<blockquote>\n<p>The Times\u2019s Wordle copyright includes the unique elements of its immensely popular game, such as the 5x6 grid, green tiles to indicate correct guesses, yellow tiles to indicate the correct letter but the wrong place within the word, and the keyboard directly beneath the grid. Times\u2019s Wordle copyright includes the unique elements of its immensely popular game, such as the 5x6 grid, green tiles to indicate correct guesses, yellow tiles to indicate the correct letter but the wrong place within the word, and the keyboard directly beneath the grid.</p>\n</blockquote>\n<p>Wow, folks. Careful about how you place keyboards relative to grids.</p>"
    },
    "author": {
        "type": "card",
        "name": "Marty McGuire",
        "url": "https://martymcgui.re/",
        "photo": "https://martymcgui.re/images/logo.jpg"
    },
    "post-type": "note",
    "_id": "40498586",
    "_source": "175"
}

{
    "type": "entry",
    "published": "2024-03-08T15:04:17-0500",
    "summary": "\ud83d\udcd5 Finished reading There Is No Antimemetics Division by qntm ISBN: 9798721503788",
    "url": "https://martymcgui.re/2024/03/08/150417/",
    "category": [
        "books"
    ],
    "author": {
        "type": "card",
        "name": "Marty McGuire",
        "url": "https://martymcgui.re/",
        "photo": "https://martymcgui.re/images/logo.jpg"
    },
    "post-type": "note",
    "_id": "40498587",
    "_source": "175"
}

Album almost done — test listeners needed!

{
    "type": "entry",
    "published": "2024-03-08T00:51:21-08:00",
    "url": "https://beesbuzz.biz/blog/8577-Album-almost-done-test-listeners-needed",
    "name": "Album almost done \u2014 test listeners needed!",
    "author": {
        "type": "card",
        "name": "fluffy",
        "url": "https://beesbuzz.biz/",
        "photo": "https://beesbuzz.biz/static/headshot.jpg"
    },
    "post-type": "article",
    "_id": "40491289",
    "_source": "2778"
}

Initial slipcast success!

{
    "type": "entry",
    "published": "2024-03-07T20:39:12-08:00",
    "url": "https://beesbuzz.biz/blog/7353-Initial-slipcast-success",
    "photo": [
        "https://beesbuzz.biz/_async/WyJjb250ZW50L2Jsb2cvSU1HXzY4NDMuanBlZyIsMSx7Im1heF93aWR0aCI6MjQwLCJtYXhfaGVpZ2h0IjoyNDAsInJlc2l6ZSI6ImZpbGwifV0.SpZ_OPF93ZBDjxTghfTiNEtLKUw"
    ],
    "name": "Initial slipcast success!",
    "content": {
        "text": "Today my first two slip-cast pots were unloaded from the kiln and I picked \u2018em up. They came out great!\nMy mold positives are 60mm across, and the bisqueware measures just under 54mm after firing, which tells me exactly what I need to know going forward. Basically anything I model needs to be 1.11x the intended final size. Easy enough to remember.\n\nI\u2019ll be glazing these, of course, although I\u2019m not quite sure what to use them for. I\u2019d only intended them for calibrating my shrink factor and they\u2019re not really a useful size for anything. Maybe they\u2019ll become the world\u2019s worst cortado cups.",
        "html": "<p>Today my first two slip-cast pots were unloaded from the kiln and I picked \u2018em up. They came out great!</p>\n<a href=\"https://beesbuzz.biz/blog/7353-Initial-slipcast-success\"></a><a href=\"https://beesbuzz.biz/blog/7353-Initial-slipcast-success\"></a><p>My mold positives are 60mm across, and the bisqueware measures just under 54mm after firing, which tells me exactly what I need to know going forward. Basically anything I model needs to be 1.11x the intended final size. Easy enough to remember.</p><p>I\u2019ll be glazing these, of course, although I\u2019m not quite sure what to use them for. I\u2019d only intended them for calibrating my shrink factor and they\u2019re not really a useful size for anything. Maybe they\u2019ll become the world\u2019s worst cortado cups.</p>"
    },
    "author": {
        "type": "card",
        "name": "fluffy",
        "url": "https://beesbuzz.biz/",
        "photo": "https://beesbuzz.biz/static/headshot.jpg"
    },
    "post-type": "photo",
    "_id": "40490078",
    "_source": "2778"
}

{
    "type": "entry",
    "published": "2024-03-07T04:10:23-0500",
    "summary": "\ud83d\udcd5 Finished reading Translation State by Ann Leckie ISBN: 9780316289719",
    "url": "https://martymcgui.re/2024/03/07/041023/",
    "category": [
        "books"
    ],
    "author": {
        "type": "card",
        "name": "Marty McGuire",
        "url": "https://martymcgui.re/",
        "photo": "https://martymcgui.re/images/logo.jpg"
    },
    "post-type": "note",
    "_id": "40489178",
    "_source": "175"
}

{
    "type": "entry",
    "published": "2024-03-06T10:47:31-08:00",
    "url": "https://aaronparecki.com/2024/03/06/5/cyberpunk",
    "category": [
        "cyberpunk",
        "homeoffice"
    ],
    "photo": [
        "https://aperture-media.p3k.io/aaronparecki.com/9c7dd0611d8e8c8b71af252e267e43af16d2c1bfafec7c667bf8ced3e17fe50a.jpg"
    ],
    "syndication": [
        "https://bsky.app/profile/aaronpk.com/post/3kn2doc5trs2e"
    ],
    "content": {
        "text": "Finally getting things cleaned up in here #Cyberpunk #HomeOffice",
        "html": "Finally getting things cleaned up in here <a href=\"https://aaronparecki.com/tag/cyberpunk\">#Cyberpunk</a> <a href=\"https://aaronparecki.com/tag/homeoffice\">#HomeOffice</a>"
    },
    "author": {
        "type": "card",
        "name": "Aaron Parecki",
        "url": "https://aaronparecki.com/",
        "photo": "https://aperture-media.p3k.io/aaronparecki.com/41061f9de825966faa22e9c42830e1d4a614a321213b4575b9488aa93f89817a.jpg"
    },
    "post-type": "photo",
    "_id": "40476499",
    "_source": "16"
}

{
    "type": "entry",
    "published": "2024-03-06 10:31-0800",
    "url": "https://gregorlove.com/2024/03/xoxo-fest-is-coming/",
    "category": [
        "covid"
    ],
    "syndication": [
        "https://bsky.app/profile/gregorlove.com/post/3kn2csrgxac2z"
    ],
    "content": {
        "text": "XOXO Fest is coming back one last time and the announcement fully acknowledges COVID, a high-quality mask requirement, and they\u2019ll have a simulcast option to an outdoor area. This is the way.",
        "html": "<p><a href=\"https://xoxofest.com/blog/2024-one-last-time\">XOXO Fest is coming back</a> one last time and the announcement fully acknowledges COVID, a high-quality mask requirement, <b>and</b> they\u2019ll have a simulcast option to an outdoor area. This is the way.</p>"
    },
    "author": {
        "type": "card",
        "name": "gRegor Morrill",
        "url": "https://gregorlove.com/",
        "photo": "https://gregorlove.com/site/assets/files/6268/profile-2021-square.300x0.jpg"
    },
    "post-type": "note",
    "_id": "40476434",
    "_source": "95"
}

{
    "type": "entry",
    "published": "2024-03-04 11:22-0800",
    "url": "https://gregorlove.com/2024/03/i-watched-a-great/",
    "category": [
        "indieweb"
    ],
    "content": {
        "text": "I watched a great video by Lauren Kim titled \u201cI deleted all my social media and made a website\u201d (runtime 26:55).\n\nShe broke it into a few chapters. In \u201cWhy a website,\u201d I liked the focus on a website as a long-term project. She also emphasized creating things for ourselves/the sake of creativity, not so much for the social validation.\n\nThen there was the website tour itself. It was great to see how excited she was and how much thought she\u2019d put into the whole process. I\u2019m glad to see younger generations making these connections and working on personal websites.\n\nThe indieweb kids are alright.",
        "html": "<p>I watched a great video by <a class=\"h-card\" href=\"https://lrnjulie.com\">Lauren Kim</a> titled \u201c<a href=\"https://www.youtube.com/watch?v=r0RqucKwIcw\">I deleted all my social media and made a website</a>\u201d (runtime 26:55).</p>\n\n<p>She broke it into a few chapters. In \u201cWhy a website,\u201d I liked the focus on a website as a long-term project. She also emphasized creating things for ourselves/the sake of creativity, not so much for the social validation.</p>\n\n<p>Then there was the website tour itself. It was great to see how excited she was and how much thought she\u2019d put into the whole process. I\u2019m glad to see younger generations making these connections and working on personal websites.</p>\n\n<p>The indieweb kids are alright.</p>"
    },
    "author": {
        "type": "card",
        "name": "gRegor Morrill",
        "url": "https://gregorlove.com/",
        "photo": "https://gregorlove.com/site/assets/files/6268/profile-2021-square.300x0.jpg"
    },
    "post-type": "note",
    "_id": "40458934",
    "_source": "95"
}

Internationalizing the Fediverse

{
    "type": "entry",
    "author": {
        "name": null,
        "url": "https://herestomwiththeweather.com/",
        "photo": null
    },
    "url": "https://herestomwiththeweather.com/2024/03/03/internationalizing-the-fediverse/",
    "published": "2024-03-03T17:12:47+00:00",
    "content": {
        "html": "<p>Yesterday, <a href=\"https://fed.xnor.in/notice/AfRZC7jgkXRA1xk6Fc\">a request was made</a> to like a post from an account with unicode in the username. As Terence Eden notes in <a href=\"https://shkspr.mobi/blog/2024/02/internationalise-the-fediverse/\">Internationalise The Fediverse</a></p>\n\n<blockquote>\n  <p>Mastodon (the largest ActivityPub service) doesn\u2019t allow Unicode usernames and has resisted efforts to change.</p>\n</blockquote>\n\n<p>So, I tried with <a href=\"https://github.com/herestomwiththeweather/irwin\">Irwin</a> on <a href=\"https://otisburg.social/\">otisburg.social</a> and the code threw an exception when I tried to interact with the account</p>\n\n<pre><code>(URI::InvalidURIError) \"URI must be ascii only \\\"https://i18n.viii.fi/@\\\\u4F60\\\\u597D\\\"\"\n</code></pre>\n\n\n<p>This is not an acceptable uri to pass to URI.parse().  In this case, I found some help from <a href=\"https://stackoverflow.com/questions/7015778/is-this-the-best-way-to-unescape-unicode-escape-sequences-in-ruby\">a stackoverflow post</a> and <a href=\"https://github.com/herestomwiththeweather/irwin/commit/b5899fc090b654383a82674d2d1bf788e2e3ce9f\">fixed the code</a> so I could interact with the account and like the post.</p>\n\n<p>From the comments in Terence\u2019s blog post, I saw <a href=\"https://github.com/swicg/activitypub-webfinger/issues/9\">Allowed characters in preferredUsername</a> has also been identified as an issue with webfinger.</p>",
        "text": "Yesterday, a request was made to like a post from an account with unicode in the username. As Terence Eden notes in Internationalise The Fediverse\n\n\n  Mastodon (the largest ActivityPub service) doesn\u2019t allow Unicode usernames and has resisted efforts to change.\n\n\nSo, I tried with Irwin on otisburg.social and the code threw an exception when I tried to interact with the account\n\n(URI::InvalidURIError) \"URI must be ascii only \\\"https://i18n.viii.fi/@\\\\u4F60\\\\u597D\\\"\"\n\n\n\nThis is not an acceptable uri to pass to URI.parse().  In this case, I found some help from a stackoverflow post and fixed the code so I could interact with the account and like the post.\n\nFrom the comments in Terence\u2019s blog post, I saw Allowed characters in preferredUsername has also been identified as an issue with webfinger."
    },
    "name": "Internationalizing the Fediverse",
    "post-type": "article",
    "_id": "40450944",
    "_source": "246"
}

{
    "type": "entry",
    "published": "2024-03-02T17:13:24-08:00",
    "url": "https://aaronparecki.com/2024/03/02/12/",
    "syndication": [
        "https://bsky.app/profile/aaronpk.com/post/3kmqxcj6tfu2q"
    ],
    "content": {
        "text": "My hopes of quickly learning some architectural rendering software to try out paint colors and other interior design plans are not working out \ud83d\ude05 There does not seem to be a quick way to learn these",
        "html": "My hopes of quickly learning some architectural rendering software to try out paint colors and other interior design plans are not working out <a href=\"https://aaronparecki.com/emoji/%F0%9F%98%85\">\ud83d\ude05</a> There does not seem to be a quick way to learn these"
    },
    "author": {
        "type": "card",
        "name": "Aaron Parecki",
        "url": "https://aaronparecki.com/",
        "photo": "https://aperture-media.p3k.io/aaronparecki.com/41061f9de825966faa22e9c42830e1d4a614a321213b4575b9488aa93f89817a.jpg"
    },
    "post-type": "note",
    "_id": "40442453",
    "_source": "16"
}

{
    "type": "entry",
    "published": "2024-03-01 17:23-0800",
    "url": "https://gregorlove.com/2024/03/disappointed-but-not-surprised/",
    "category": [
        "covid"
    ],
    "syndication": [
        "https://bsky.app/profile/gregorlove.com/post/3kmohhq74372b"
    ],
    "content": {
        "text": "\ud83d\ude29 Disappointed but not surprised that the CDC dropped their 5-day isolation guidance for COVID infections. Their decision to reduce it from 10 days to 5 a couple years ago wasn\u2019t based in science and neither is this. Onward marches the destruction of public health for the sake of a temporary buck.",
        "html": "<p>\ud83d\ude29 Disappointed but not surprised that the CDC dropped their 5-day isolation guidance for COVID infections. Their decision to reduce it from 10 days to 5 a couple years ago wasn\u2019t based in science and neither is this. Onward marches the destruction of public health for the sake of a temporary buck.</p>"
    },
    "author": {
        "type": "card",
        "name": "gRegor Morrill",
        "url": "https://gregorlove.com/",
        "photo": "https://gregorlove.com/site/assets/files/6268/profile-2021-square.300x0.jpg"
    },
    "post-type": "note",
    "_id": "40436119",
    "_source": "95"
}

Link: Dave Rupert on “How to Get on a Podcast”

{
    "type": "entry",
    "author": {
        "name": "Jared White",
        "url": "https://jaredwhite.com/",
        "photo": null
    },
    "url": "https://jaredwhite.com/links/20240301/how-to-get-on-a-podcast",
    "published": "2024-03-01T15:53:03-08:00",
    "content": {
        "html": "<blockquote>\n  <h2><a href=\"https://daverupert.com/2024/02/how-to-get-on-a-podcast/\"></a></h2>\n\n  <p>I\u2019ve been co-hosting a weekly podcast for nearly 12 years with over hundreds of guests and I want to tell you the secret to getting invited on a podcast. Are you ready? Here it goes: <em>Already be talking about something</em>.</p>\n\n</blockquote>\n\n<p>Great advice from noted <strong>#</strong>WebDev podcaster Dave Rupert. I\u2019ll add one more layer of commentary of top of the excellent points made in this article.</p>\n\n<p><strong>Keep saying the same things repeatedly until you\u2019re sick of it.</strong> \ud83e\udd2a</p>\n\n<p>You know how folks complain about the weird quirk of human nature where if you hear somebody tell you the same lies over and over and over again, you start to believe them? Well if that\u2019s true for nonsense, grifts, and psyops, just think how even <em>more</em> true that is for stuff that\u2019s thoroughly legit.</p>\n\n<p>A long time ago I realized that I couldn\u2019t just voice a thought about an important topic once. <em>Haha! I wrote that single blog post! My job here is done!</em> or <em>I posted this hot take one time! Never again!</em> \ud83d\ude05</p>\n\n<p>Gotta keep saying it. And saying it. And saying it. And saying it. Until you\u2019re sick of it. And then say it some more.</p>\n\n<p><strong>Now you\u2019re an expert. Congratulations!</strong> \ud83d\ude1c</p>",
        "text": "I\u2019ve been co-hosting a weekly podcast for nearly 12 years with over hundreds of guests and I want to tell you the secret to getting invited on a podcast. Are you ready? Here it goes: Already be talking about something.\n\n\n\nGreat advice from noted #WebDev podcaster Dave Rupert. I\u2019ll add one more layer of commentary of top of the excellent points made in this article.\n\nKeep saying the same things repeatedly until you\u2019re sick of it. \ud83e\udd2a\n\nYou know how folks complain about the weird quirk of human nature where if you hear somebody tell you the same lies over and over and over again, you start to believe them? Well if that\u2019s true for nonsense, grifts, and psyops, just think how even more true that is for stuff that\u2019s thoroughly legit.\n\nA long time ago I realized that I couldn\u2019t just voice a thought about an important topic once. Haha! I wrote that single blog post! My job here is done! or I posted this hot take one time! Never again! \ud83d\ude05\n\nGotta keep saying it. And saying it. And saying it. And saying it. Until you\u2019re sick of it. And then say it some more.\n\nNow you\u2019re an expert. Congratulations! \ud83d\ude1c"
    },
    "name": "Link: Dave Rupert on \u201cHow to Get on a Podcast\u201d",
    "post-type": "article",
    "_id": "40436031",
    "_source": "2783"
}

{
    "type": "entry",
    "author": {
        "name": "Jared White",
        "url": "https://jaredwhite.com/",
        "photo": null
    },
    "url": "https://jaredwhite.com/pictures/20240226/another-a-href-https-pixelfed-social-discover-tags-mosstodon-src-hash-title-mosstodon-class-u-url-hashtag-rel-external-nofollow-noopener-mosstodon-a-entry",
    "published": "2024-02-26T10:55:25-08:00",
    "content": {
        "html": "<img alt=\"\" src=\"https://pxscdn.com/public/m/_v2/4580/7c649620b-69b6c5/0pcE2e9Jfg31/xFCHJ7KedbjfvPOO2AgyV0qiEoLdO2G2ixuzQCSg.jpg\" /><p>Another <strong>#</strong>Mosstodon entry for y\u2019all, also taken at Lacamas Park. Some creek and fern action going on there too! Very exciting. \ud83d\ude05 <a href=\"https://jaredwhite.com/tag/washingtonexplored\">#WashingtonExplored</a> <a href=\"https://jaredwhite.com/tag/nikonzfc\">#NikonZfc</a></p>",
        "text": "Another #Mosstodon entry for y\u2019all, also taken at Lacamas Park. Some creek and fern action going on there too! Very exciting. \ud83d\ude05 #WashingtonExplored #NikonZfc"
    },
    "post-type": "note",
    "_id": "40436032",
    "_source": "2783"
}

{
    "type": "entry",
    "author": {
        "name": "Jared White",
        "url": "https://jaredwhite.com/",
        "photo": null
    },
    "url": "https://jaredwhite.com/pictures/20240225/it-s-been-a-while-since-i-offered-an-entry-into",
    "published": "2024-02-25T08:51:39-08:00",
    "content": {
        "html": "<img alt=\"\" src=\"https://pxscdn.com/public/m/_v2/4580/7c649620b-69b6c5/UQwhMkfZKFWp/DOVRUcbvXLMcQf4is57JIQXfeTBY1LsWrRdsFMI8.jpg\" /><p>It\u2019s been a while since I offered an entry into <strong>#</strong>Mosstodon, so here goes. I was enjoying a hike through Lacamas Park in southern Washington, and there was oodles of moss everywhere. Stay tuned for more PNW greenery! \ud83d\ude04 <a href=\"https://jaredwhite.com/tag/washingtonexplored\">#WashingtonExplored</a> <a href=\"https://jaredwhite.com/tag/nikonzfc\">#NikonZfc</a></p>",
        "text": "It\u2019s been a while since I offered an entry into #Mosstodon, so here goes. I was enjoying a hike through Lacamas Park in southern Washington, and there was oodles of moss everywhere. Stay tuned for more PNW greenery! \ud83d\ude04 #WashingtonExplored #NikonZfc"
    },
    "post-type": "note",
    "_id": "40436033",
    "_source": "2783"
}

{
    "type": "entry",
    "author": {
        "name": "Jared White",
        "url": "https://jaredwhite.com/",
        "photo": null
    },
    "url": "https://jaredwhite.com/pictures/20240120/a-remembrance-of-happy-times-looking-east-over-a-href-https-pixelfed-social-discover-tags-portland-src-hash",
    "published": "2024-01-20T11:55:53-08:00",
    "content": {
        "html": "<img alt=\"\" src=\"https://pxscdn.com/public/m/_v2/4580/3b17271c9-2ea36d/DULnUjAIqMB2/nWuSI0PkdnjKol7eaitmulbpi8gWyMZPug6uAzyt.jpg\" /><p>A remembrance of happy times, looking east over <a href=\"https://jaredwhite.com/tag/portland\">#Portland</a>. Photograph taken by Angelique. <a href=\"https://jaredwhite.com/tag/oregonexplored\">#OregonExplored</a> <a href=\"https://jaredwhite.com/tag/nikonzfc\">#NikonZfc</a></p>",
        "text": "A remembrance of happy times, looking east over #Portland. Photograph taken by Angelique. #OregonExplored #NikonZfc"
    },
    "post-type": "note",
    "_id": "40436034",
    "_source": "2783"
}

{
    "type": "entry",
    "published": "2024-03-01T19:06:27-08:00",
    "url": "https://aaronparecki.com/2024/03/01/15/error",
    "category": [
        "error"
    ],
    "photo": [
        "https://aperture-media.p3k.io/aaronparecki.com/70a39e60a7ba5533f807609eaa8e2c8e48fa1c4192a5f4536bbcba3ad9f400d6.png"
    ],
    "content": {
        "text": "There's something very poetic about this error message. \n\n\"Current date is no longer available, please select a date in the future.\"",
        "html": "There's something very poetic about this error message. <br /><br />\"Current date is no longer available, please select a date in the future.\""
    },
    "author": {
        "type": "card",
        "name": "Aaron Parecki",
        "url": "https://aaronparecki.com/",
        "photo": "https://aperture-media.p3k.io/aaronparecki.com/41061f9de825966faa22e9c42830e1d4a614a321213b4575b9488aa93f89817a.jpg"
    },
    "post-type": "photo",
    "_id": "40435577",
    "_source": "16"
}

Diagnostic dilemma

{
    "type": "entry",
    "published": "2024-03-01T18:03:01-08:00",
    "url": "https://beesbuzz.biz/blog/12295-Diagnostic-dilemma",
    "name": "Diagnostic dilemma",
    "content": {
        "text": "Okay, so, I\u2019ve been having a lot more frustrating issues as of late:\nWhatever my connective tissue issue is, it\u2019s getting way worse\nMy kneecaps love to dislocate while I walk, and after 1.5 miles or so my knees start to give out under me\nMy toes also love to either dislocate or weirdly cramp at random, which is quite painful, and getting them back in place is challenging\nMy other joints (wrists, shoulders, TMJ, and sometimes elbows and ankles) are also in pain a lot of the time, and are possibly getting inflamed\nI\u2019ve been having frequent bouts of vertigo (which are especially troubling when I\u2019m driving)\nMy tinnitus has gotten a lot worse recently\nAlso my GERD is back, and my usual dietary measures to keep it at bay aren\u2019t working\nI\u2019m also getting occasional unexplained itchy rashes that flare up and subside after a few days\nAnd I am fatigued all. the damn. time.\nYesterday I had a doctor appointment to try to figure stuff out, and while the appointment itself was pretty unproductive due to the usual crap with modern healthcare practices, the doctor did at least run a lot of labwork for me, including checking autoimmune and inflammation factors and the most common connective tissue disorder markers. It all came back negative.\n\nShe did at least refer me to a rheumatologist, but I suspect the rheumatologist is just going to look at the labwork and say there\u2019s nothing they can do for me. Most likely the answer is going to be the usual \u201cdiet and exercise,\u201d when my diet is already pretty decent and I have difficulty doing exercise because of the very problems I\u2019m complaning about.\n\nThe only thing that was even slightly out of the ordinary on the bloodwork was a borderline c-reactive protein, which indicates either systemic inflammation or coronary artery disease, and given that I\u2019m a bit overweight I can guess which of the two the doctors are going to assume it is (especially without any other markers indicating underlying causes for inflammatory disease).\n\nThere\u2019s got to be something causing all this but the state of the medical industry means that it\u2019s unlikely that anyone I talk to in the medical field is going to come up with ideas on their own, they\u2019re just going to tell me \u201cdiet and exercise\u201d and to do BPPV exercises. During the Epley maneuver the vertigo does get way worse, but completing the maneuver doesn\u2019t resolve it.\n\nAnd of course none of this even comes close to addressing my joints not moving the way they\u2019re supposed to. I love walking but I sure don\u2019t like the feeling of my knee bending backwards when I do so. Nowadays I need knee braces and a cane whenever I go out, if I want to have any chance of making it home without being in agony. And never mind playing DDR.\n\nIt\u2019s just, gosh. I wish someone out there also has these problems but also knows what the cause is so that I can find some hope of understanding what I can do to make things better. There is so much more I\u2019d rather be doing than what I\u2019m currently capable of.",
        "html": "<p>Okay, so, I\u2019ve been having a lot more frustrating issues as of late:</p>\n<ul><li>Whatever my connective tissue issue is, it\u2019s getting way worse</li>\n<li>My kneecaps love to dislocate while I walk, and after 1.5 miles or so my knees start to give out under me</li>\n<li>My toes also love to either dislocate or weirdly cramp at random, which is quite painful, and getting them back in place is challenging</li>\n<li>My other joints (wrists, shoulders, TMJ, and sometimes elbows and ankles) are also in pain a lot of the time, and are possibly getting inflamed</li>\n<li>I\u2019ve been having frequent bouts of vertigo (which are especially troubling when I\u2019m driving)</li>\n<li>My tinnitus has gotten a lot worse recently</li>\n<li>Also my GERD is back, and my usual dietary measures to keep it at bay aren\u2019t working</li>\n<li>I\u2019m also getting occasional unexplained itchy rashes that flare up and subside after a few days</li>\n<li>And I am fatigued all. the damn. time.</li>\n</ul><p>Yesterday I had a doctor appointment to try to figure stuff out, and while the appointment itself was pretty unproductive due to the usual crap with modern healthcare practices, the doctor did at least run a lot of labwork for me, including checking autoimmune and inflammation factors and the most common connective tissue disorder markers. It all came back negative.</p><p>She did at least refer me to a rheumatologist, but I suspect the rheumatologist is just going to look at the labwork and say there\u2019s nothing they can do for me. Most likely the answer is going to be the usual \u201cdiet and exercise,\u201d when my diet is already pretty decent and I have difficulty doing exercise <em>because of the very problems I\u2019m complaning about</em>.</p><p>The only thing that was even slightly out of the ordinary on the bloodwork was a borderline c-reactive protein, which indicates either systemic inflammation or coronary artery disease, and given that I\u2019m a bit overweight I can guess which of the two the doctors are going to assume it is (especially without any other markers indicating underlying causes for inflammatory disease).</p><p>There\u2019s got to be <em>something</em> causing all this but the state of the medical industry means that it\u2019s unlikely that anyone I talk to in the medical field is going to come up with ideas on their own, they\u2019re just going to tell me \u201cdiet and exercise\u201d and to do BPPV exercises. During the Epley maneuver the vertigo does get way worse, but completing the maneuver doesn\u2019t resolve it.</p><p>And of course none of this even comes close to addressing my joints not moving the way they\u2019re supposed to. I love walking but I sure don\u2019t like the feeling of my knee <em>bending backwards when I do so</em>. Nowadays I need knee braces and a cane whenever I go out, if I want to have any chance of making it home without being in agony. And never mind playing DDR.</p><p>It\u2019s just, gosh. I wish someone out there also has these problems but also knows what the cause is so that I can find some hope of understanding what I can do to make things better. There is so much more I\u2019d rather be doing than what I\u2019m currently capable of.</p>"
    },
    "author": {
        "type": "card",
        "name": "fluffy",
        "url": "https://beesbuzz.biz/",
        "photo": "https://beesbuzz.biz/static/headshot.jpg"
    },
    "post-type": "article",
    "_id": "40435500",
    "_source": "2778"
}

{
    "type": "entry",
    "published": "2024-03-01T16:25:21-08:00",
    "url": "https://aaronparecki.com/2024/03/01/8/weekend",
    "category": [
        "work"
    ],
    "syndication": [
        "https://bsky.app/profile/aaronpk.com/post/3kmoe5nzde62s"
    ],
    "content": {
        "text": "I'm starting to think the 5/2 weekday schedule isn't working for me, and I need to try 10/4 instead. It takes a few days to ramp back up to work brain, and by Friday I finally feel like I'm on a roll, only to lose all context again over the weekend."
    },
    "author": {
        "type": "card",
        "name": "Aaron Parecki",
        "url": "https://aaronparecki.com/",
        "photo": "https://aperture-media.p3k.io/aaronparecki.com/41061f9de825966faa22e9c42830e1d4a614a321213b4575b9488aa93f89817a.jpg"
    },
    "post-type": "note",
    "_id": "40434589",
    "_source": "16"
}